Raising Disabled

High Low Buffalo

Deonna Wade and Rhandyl Vinyard Season 3 Episode 54

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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the last couple of months.  

Our prayers are with the flood victims in our home state of Texas.  We compiled a small list of places where you can donate to people in need like we have:

https://cftexashillcountry.fcsuite.com/erp/donate/create/fund?funit_id=4201

https://spiritofgiving.org/donate/?int=curbside-home-hero.hill-country-disaster-relief

https://www.cbsnews.com/texas/news/where-to-donate-help-central-texas-flood-recovery/


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Deonna: [00:00:00] Hey y'all. Welcome back to Raising Disabled podcast. So today we're starting something kind of new. We used to do little catchups before each episode, but that got kind of, um, if we're being totally honest, tricky for us to record those every time. And we came up with this new idea. My son actually taught me this game.

It's like a conversation starter game. It's called High Low and Buffalo. So some of, you've probably heard of this before, but you basically share what your high was for the day and what your low was, and then your buffalo. And that's basically just something random that happened to you or just something funny or just something silly and random.

Yeah. And so we are going to use this format to do catch ups. Maybe every month or so, just more spread out and we'll just dedicate an entire episode to what our life has been like. For me and Rhandyl. And then we'll do the other episodes like we've [00:01:00] normally been doing. And so, , first we're gonna share our highs today.

So Rhandyl, what were your highs since we last caught up? Which was before school got out? I know it's been a long time. 

Rhandyl: I know. I was looking through, we always look through our photos to see, okay, what have we been doing? And , actually luckily we've had a lot of highs this summer. And so I was like, okay, what am I gonna narrow it down to? I know. Luckily not a whole lot of lows, so that's good. No it's always good. Yeah. ,

So the beginning of the summer started out with this family fun fair that we had here locally. Me and a couple of my therapist friends came up with the idea and coordinated it and sent out invites to. Agencies, pediatrician offices Facebook groups that we have that are local for not only kids with disabilities, but any kid that's been in therapy, physical therapy, occupational therapy, speech [00:02:00] therapy, , in the last couple of years. .

We just came up with a lot of fun things and , we were able to get sponsors. The location was donated and . It ended up being a way bigger turnout and better turnout than we had initially anticipated because Yeah. We, it was a little last minute and we didn't really know what we were doing. We had all these ideas, but we didn't know how to like, put 'em all together.

But it all came together great. The podcast, we helped sponsor it. And we had, just to name a few things. There's a place here, it's called Ambu Amtraks. I think there, there are other places too, but they build these specialized tricycles for kids with disabilities they can make these amazing tricycles super compatible for all sorts of kiddos. And so they have all sizes from like toddler to adult. And so they were there and they had a lot of trikes that kids could try and also [00:03:00] families could apply for their own. And it's a donated thing . So it's great they build them specifically for kids and they're free.

There were therapy dogs there. They were so cute. One, I think that one of the kids' favorite spots, we had a wheelchair and gate trainer. Decoration station. That was really fun. Yeah. There was all sorts of streamers and I. You name it. Like we, 

Deonna: we just now took allie's, decorations off like a week ago. This was a long time 

Rhandyl: ago. Remi still has some on one of her wheels, but most of 'em have fallen off or They got fallen off. Yeah. Real people are like, what is that? Yeah. But it was cute and there was also a area we had a lot of capes and. They could put stickers and write, decorate a cape. So a lot of the kids were just like walking around or in their wheelchairs with their capes and it was adorable. And then of course, there was a fire truck and a trash truck and a cop car, and we got a petting zoo to come and. And that was cute. We had one of [00:04:00] our therapists as a friend, she does balloon animals. And so she had her balloons out and was making all these fun balloon animals for the kids. And there was so many different games that we had.

We also had a 360 selfie camera set up, and that was fun. A hit. Yeah. And karaoke. It was just like. I don't know. It was just the best experience. I was so stressed out before, but then actually being there and seeing Remi and Allie and all the kids just living their best life, we ended up getting a lot of volunteers for the day of, so that was wonderful.

And then Deonna, I. Volunteered her to do face painting. I was like, oh, she's so artistic. Like maybe she can do face painting. And you're like 

Deonna: keyword, maybe. No, I did. Okay. There were a couple that I really screwed up and I was like, sorry. Okay. But it was fun. I mean, I didn't get to go see all the things since I was sitting there doing that. I know you kinda, yeah. But the kids kept coming back and telling me, but it was such a good event [00:05:00] and it was. Really just nice being around other parents whose kids were disabled. Like it felt very chill and I don't know, you didn't feel like your kid was the only one that day, 'cause we always feel like that. So it was nice having a day where I. Everybody was in your shoes. 

Rhandyl: Yeah. And it was also nice because it was local, so there was a lot of good community, connection there, 

Deonna: We're, yeah. I hope it becomes an annual thing 'cause it was a lot of fun.

Rhandyl: That's the plan. Yeah. We would love to do it. Right after school's out and hoping it just gets figuring and better so that, no, it was fun. It was, that was the. The first high for the summer.

And then right after that actually I took Remi to Houston. It was just me and we flew her night shift nurse there and then day shift nurse traveled with me and it was the most appointments she's had probably ever in Houston, follow up appointments since we, yeah. I discharged her from the hospital there. Back in [00:06:00] 2017. So it was a week long, five days worth of appointments. She she saw. Gi, ENT, pulmonary genetics, all the things everybody.

Yeah. And they really wanted us to her to get into this aero digestive team, and it's like a combination of ENT, pulmonary and gi and oh yeah, she had a trip. Yeah, she had this triple scope where they do like your typical bronchoscope and then an EGD and then pulmonary also went down and, basically, she had all these things done ugh. But nothing changed, it was like one of those things like, we're gonna, maybe we'll find out something new. But luckily nothing negatively. I say that she has I. We're gonna have to start her on like a new med for her reflux. But other than that, great. It looked like all of her.

Deonna: Does she have to do a sleep study every time she goes?

Rhandyl: No, actually we didn't do that. They're talking about possibly That's nice. Doing that next year, but yeah. I don't know. So we have to do one every time. I [00:07:00] know y'all. Yeah. You've talked about that and I'm like, oh, it sounds, yeah.

But yeah. She's done some but. She basically has central apnea, so it's like they already know it's gonna happen, that she has to be on the vent at night. And yeah, definitely. But yeah, no, luckily the main reason she did the triple scope was to see if there was any areas in her airway that possibly needed. Another reconstructive surgery. Oh right, right. but, everything looked great. From her procedure she had in Boston in 2019, everything was still sutured Great. Still really open and good. That's relief. Yeah. So that was, that was 

Deonna: I, because they always warn you, when you're doing these surgeries. That's what happened with Ali's diaphragm, plication, like they're like. We may have to redo this at some point, and you're thinking, oh my gosh. Because that was like a chest tubes and all the things, you know. oh, same. Yeah. You're just like, please know.

Did you guys get to do anything fun while you were in Houston? Yeah. [00:08:00] So, Or at least eat at your favorite restaurant or something? 

Rhandyl: Yeah, we didn't do the restaurant thing this year because we got an Airbnb and it was just us and we ended up Oh, yeah. Getting the Walmart delivery and we were, we cooked a bunch of our meals and it was nice. It was relaxing. Yeah. When we were at the Airbnb, it wasn't like a Yeah. The hotel situation. But yeah, we, two fun things that we did. We went to the aquarium in downtown Houston and Oh yeah. We've been wanting to go there for. The last few years. Yeah. But we're usually there for such a short period of time. We can usually just do one thing and yeah. We go to the zoo or and it was super rain. Mm-hmm. The entire week we were there. So we knew whatever we had to do was gonna have to be indoor inside. Yeah.

And so we went to the aquarium and Remi absolutely loved it. She was Oh good. Obsessed with a sting rays. And it was so funny, every time we walked up to. The glass, it was so funny but every time we would roll Remi up there in her wheelchair to get close to the glass, like a stingray would just come up to the glass and [00:09:00] swim right in front of her and she would just throw her hands up and just smile and, Aw. They had of course one of those tunnels that's cool, that go above you so you can see all the fish above you. And she. If anybody's seen her, she loves to throw her head back and so she was just living her best life. Yeah. Being able to see something other than lights above her. So they have one of those at the zoo now too in Houston. Yeah. Yeah. And it was so handicap accessful, that was really nice. Oh yeah. 

Deonna: They haven't taken Allie to that yet. 

Rhandyl: They have a lot of outdoor rides and things like that, but none of them are running. Really. I think the train was running around the place, but we didn't do any of the rides, but we spent a few hours there and she loved it. She did not like, they have an area where you can , touch the sting rays and, but it's heck been kind of splashing and its smelled awful in there. We went in there for just a second and. She was like, no, I like the sting rays with behind the glass. Thank you. 

Deonna: Yeah. But we've done the Moody Gardens Aquarium there, but not the downtown one.

Rhandyl: We haven't done, the Moody Gardens. That's on our, [00:10:00] that's fun. Yeah. Bucket list for the next one.

But the big highlight of the Houston trip, my best friend lives there and her little girl is a couple of years younger than Remi, and we met them at the Galleria and they have this place. Oh yeah, actually Deonna told me about it before we went and then I guess Allie had found it on Yeah, online. Online. Because you guys are going there later this month. And Yes, she, I was like, oh my gosh. This is. Amazing.

So right now Remi is absolutely obsessed with Bluey. If we just let her have free reign on her communication device, which we do, she just, she's requesting bluey nonstop. And we were like, okay, you have to do something else. But she's completely obsessed with Bluey.

And so there is this place called Camp Bluey. At the Galleria and when you you just you go up to the store and it just looks like a toy store from the inside, the outside. But you can go online or I'm sure you [00:11:00] can get tickets there, but you sign up for a time for the Bluey camp and whenever it's your time to go, there's a group of kids with their parents and they have these really fun workers that are . So much fun and they act super silly and the kids loved them. Yeah. And they opened up the secret wall and you go in and it is a life-size bluey house. It is the house from Bluey. And it is, yeah. Really cool. And they did all the little games they do on the show, keepy uppie and they have dance parties. Oh my gosh. And it was so funny, Remi.

Deonna: I didn't know that. That's fun. 

Rhandyl: Yeah. At first she was like, she didn't know, she was a little overstimulated. And then when she figured out, okay, she's am I have 

Deonna: a favorite dream right now? What is gonna be fun? I know. 

Rhandyl: But then as soon as she figured out, okay, like this is what this is, she wanted out of, she wanted out of her wheelchair and she wanted me Oh, a hundred percent. To help her walk all around Louis's house and Oh man, she even, that's so cool. I would ask her. When all the kids, 'cause the keepy uppie game and the dance party kind of got [00:12:00] a little crazy and I would ask her, do you wanna go, join? And she, both times she was like, yes. And so it was super fun.

And then her favorite character , and it's not even like a main character and the show, but she loves the unicorse puppet. It's oh yeah. Really sarcastic and rude. And she, yeah, which she just, she always loves all the, like villains and whatever, but she's evil inside. Had uni unicorn there, this guy, and he had, he sounded just like unicorse on the show and it was so funny. That's so funny. He he did his little skit and then left. And my friend, we were like, oh, Remi probably wanted to meet her. My friend snuck around and found him and had unicorse come and talk to Remi. And that was the highlight. She was absolutely, oh my gosh. Just, oh, just smiling and laughing the whole time.

It was so cute. But I'm excited to go. Yeah, we were there. Fun. It's so we were in there for a while and there was everything like the bedroom, the kitchen, the living room, wow, [00:13:00] backyard. And then at the end you get to meet Mascot Bluey. The mascot Bluey and bingo. That's cool. And that was fun. So yeah, it was a, it was really good. It was a lot of fun. But yeah, so I'd say those are my highs for the last few months. But what about you guys? 

Deonna: Yeah, we just, we've traveled quite a bit I feel like, but we've been to Artesia, my hometown twice. We went for my nephew's birthday and so that was a lot of fun. We had a good time with him. And then I went back a couple weeks later for my birthday and my aunt's and everything, and so lots of family time and things like that.

Allie did a drama camp here in Lubbock. It's called Moonlight Musical Camp. And so they did a production of the Arista Cats. And so Ally was an Allie cat, which we thought was funny, but that's cute. Um, She did really good and I'm really proud of her when she does stuff like that because I did, theater and musicals and drama. Not [00:14:00] really drama, but the musical side of it and everything. And it's so scary. You get nervous when you're gonna go sing in front of people and stuff like that, but Oh yeah, she does it now. I think she gets nervous, but she still does it and has fun with it. So they're doing another production of Winnie the Pooh next week. So it's just Oh, fun. A lot of that stuff. But it's fun. So she'll do that next week too. 

Rhandyl: And it takes a lot. I know 'cause I loved to do plays and I was always in that, in school and would sing at the church and things like that. And yeah, it's definitely nerve wracking and I can't imagine it's so nerve wracking. For Allie already, she, all of our kids have people's eyes on them all the time. Yeah. , She's so brave and I just love her. Even when we were doing the karaoke, like I mentioned, the fun fair. She's just she has no, oh, she went up there. She is all about it. And I, it was, I just love it. 

Deonna: I do too. And it's funny 'cause like I always used to tell Cole, nobody's looking at you. Only me and Dad are looking at you. Everyone's looking at [00:15:00] their own kid. But with Allie, that's not really true. People are looking at Allie it's like they're looking at their kid and Ally because she just, she looks different, but she had fun.

And then one of our nurses, Melissa, she has horses in town. And so the other day we went out there, and this is kind of a high for Cole, but Cole got to go out and ride the horses. And me and our nurse, our other nurse got on the horses from ac. And so it was just like a fun day. And Allie actually. One of the horses likes Nilla wafers, and Allie was sticking them. They were, we were putting 'em on Allie's hand, and Allie was feeding the horses. I couldn't believe she was letting the horse lick her hand like that, but, Aw. So that was fun, just getting to do that. So now Cole's gonna go out there all the time with our nurse and do horses, so that'll be fun.

But the big highlight has been, we went to. Church camp last week, me and the kids went [00:16:00] and it was in the mountains in New Mexico. And it just was so much fun. Like they would have these fun dance parties at night and their classes were great. And just singing in the mountains and it was like raining, which I. The rain did present some issues with me, with Allie, obviously like mud and stuff, but I would say it's probably the hardest physical and mental thing I've ever done with Allie, just because I'm really not that big of a person and I'm pushing, no, you're tiny.

Like a hundred. Pounds of her and her chair and all, just like all that combined. Yeah. But the first day I was really stubborn and was doing it alone, pretty much. But then as the week went on, more people started helping me and I was asking for help, but I did get very sore. But it was like, I. Just basically the most, 

Rhandyl: yeah, I'm sure it wasn't very, handicap accessible. 

Deonna: Oh no, it's in the mountains and Sure. There's [00:17:00] rocks and mud and sand and, but we, it was fun just getting to experience that with them. I didn't think Allie would ever get to go to a camp out in the mountains, like there was just too many. Dangerous factors and unknowns. Sure. And you're hours from hospitals. It's not like you can just run to the hospital. No, 

it was a little crazy for us to do it, but definitely worth it. And then it just, it was so cool seeing people I. Get closer to her. And so cool seeing people watch Cole and learn how to be with her and what to do. Mm-hmm. And as the week went on, kids got more and more comfortable with her and like it was really good. But these are all people that we go to church with every week. Yeah. So it's not like random people from all over. Our church goes to this camp together. So it was fun. Like we had a great time and it was. Tiring, but like a good, good, tiring,

Rhandyl: yeah, man. Church camp was always the best. Yeah. Memory, a lot of [00:18:00] memories made. I'm so glad that Allie was able to join. But man, yeah. That I can only imagine how exhausted you were. 

Deonna: I like one night they had a little party until 1230 or something. Oh wow. And then Allie had to be there for a flagpole the next morning, like at. Seven 15 or something. And we have her routine. We have to do Sure it takes a couple of hours. So I think I went to bed like at one 30 and had to get up at five 30. And my mom came in there and was waking me up. I was like, I am going to like, I can't do this. But no, it was a lot of fun and just so many good memories and everything,

but. As we kind of transition into our lows, , Friday was 4th of July, we're leaving camp, and then we leave camp and I get back on wifi and find out that all these Texas kids got killed at camp and you just like. It just I don't know. Like [00:19:00] you were at camp and then you get home and you find out they were all at camp and it just was a bad feeling. It's not close to us, but physically, it's in the same state as us. Yeah. It just feels very close to home and. It is so I have hardly even been able to watch the news about it because, no, I don't know about you, but I can't handle crap like that sometimes. No. It's just too much. 

Rhandyl: Yeah. It's just so tragic and I 

Deonna: just constant photos. Oof. Yeah. Yeah. But we can maybe share on our notes if you wanted to give money to Texas Flood Relief, what you can do, but.

Yeah, it made me feel like I was all excited to share about camp and then I felt like insensitive about sharing about it because it was like I came home and was okay. I don't know, it's just like a weird, it's been a tough, weird week in Texas for people. Yeah.

Rhandyl: Very tragic. And I just. Yeah, I'm hoping that they're able to recover. Yeah. It's for the families. 

Deonna: It was horrible. [00:20:00] But my low for the last few months is just, we had a tornado in Lubbock and the tornado didn't hit our house or anything. It was outside of town. Yeah. It did level some houses and things like that, but the winds and the hail that were attached to this tornado did a number on my house.

And so we had, this is what sucks. We already had a insurance claim on our roof 'cause it had hail damage from before. And that's just part of living in this part of the country. Yes. You get a new roof every few years, but Yep. We had to open a new claim because it that's just a lot.

You just, you don't like to have to throw essentially nine or $10,000 out the window. But we had to do another claim because our windows got busted in and our bedroom and then. We have to get new flooring in there because the glass is still, like in the carpet and stuff. Our garage [00:21:00] door got destroyed. Just our roof got worse. So we just, it's one of those deals we're okay and I felt bad. Our nurse's car got destroyed and our cousin's car got destroyed. It just was a lot.

But it really, I. Caused Allie to have some pretty extreme anxiety because we all had to get in my closet, which is what you do. Yeah. You get in the room without windows or whatever. And, so now every time it's cloudy outside Allie's like, oh my gosh, is it gonna be a tornado again? And I'm like, no, I don't. But you're like, I don't think so. But yeah, she's real nervous about storms now because of that, because of just hearing your own windows get bashed in and all that. But yeah.

Rhandyl: And the sirens, I mean, the tornado sirens were so loud. 

Deonna: So loud. Yeah. And scary. And we have one right by our house. It's across the street from our house. And now my son, this is just, I [00:22:00] love this because my kids are normal siblings, even though one of 'em is disabled and my son is such a brat. Like he'll get a recording off of the. Internet of a tornado siren, and he'll go put it up next to the wall of Allie's room or something and she'll be like, oh my gosh. And we're like, cool. Oh my gosh. Stop. Wow. She already, he's such a punk. What a. It's funny that he still gives her crap and he doesn't treat her like a little princess. Yeah. But we were just like, dude, she is full-blown, scared of this. Stop it, you punk. But it was funny.

That was kind of our low of the summers, just having to spend tons of money and get all this stuff fixed and redone. But e especially after this flood, I'm you know what? We're all okay. It is what it is. I know. Just. Pay the money and move on with your life, but it's all good. Yeah. What's y'all's low? 

Rhandyl: So we are on a different side of town than you guys. We didn't get the hail [00:23:00] damage. We just had a lot of wind damage and lightning strikes and things like that. Yeah. But. We're in the process of replacing our fence. So it's just, the weather here is all the things. Just, yeah. Being a homeowner here in West Texas is a pain in the butt. The weather does not, it's like tornado Alley Comply.

And so I was actually at a work party and I was in downtown Lubbock. It wasn't even. Raining. It was cloudy, but there was no rain yet. And I'm getting these calls from my husband and he's like, where are you at? And I'm like, I'm still here. And he was like. The t there's come back, there's tornado. There's a tornado. He is sending me pictures of outside of not even very far from our house. I'm like, oh my gosh. Yeah. Was close to your house. Yeah. As I'm driving back home, it's just getting worse and the weather. I'm like, oh my gosh, I don't know if I should have drove in this. I finally get home and we have a basement and day shift [00:24:00] nurse. Our respite employee night shift nurse. Both kids, both dogs are all in the basement, just like camping out, watching a movie. Yeah, we hadn't lost power, but I pull up and the generators are just going full of blast. There's extension cords all through the house. I'm like, I haven't even gone that long. What is that?

Deonna: No. Things really escalated quickly. Yeah. 

Rhandyl: And and so of course I get down in the basement and I'm looking around at. Okay. If this. Do we have everything? At least for, Remi for medical stuff? Yeah. Yeah. So then I'm like just back and forth, up and down, getting all the things. And my husband, of course, he's like your typical Panhandle West Texas, he's out in the front yard, videoing it and watching it come get your butt inside. Yeah. So that was pretty dramatic for a few hours. But everything. It, it ended up being okay, but yeah, our 

Deonna: , And our closet was our nurse, my cousin, her two kids, my kids, we grabbed some [00:25:00] of allie's medical equipment. And then me, but my kids didn't start freaking out till I got the nugget, that foam bed thing. I got the nugget and started lining the doors with the nugget. And when I brought my dog in, 'cause that's not my dog really? That is my husband's dog. And when I brought the dog in, Allie started freaking out. 'cause she's like, oh my gosh, mom doesn't even care about Zoe and she's bringing her in. This is bad. And I was like, haha. You're not wrong like I am, but it was hilarious. I was like, oh my gosh. Yeah, that was wild. But 

Rhandyl: it was wild. Um, And then probably the biggest low recently we were getting ready to go on a five day trip back home to Shamrock, where we're from for the 4th of July. And, both kids ended up like not feeling well. So my son had a sore throat . I took him to the doctor 'cause where I'm from is in the middle of nowhere. There's not any medical. Yeah. I'm like, we've gotta figure this out. Do you have [00:26:00] strep throat? Whatever. He tested negative for everything, so that was good. Just, he just needed some meds and it was good.

But then the nurse texted me, called me. She's like, Remi's urine smells really weird. And it's like a weird color. That's always a good sign. What? We ended up having to the morning that we were gonna leave, we were, we had all these plans to like, leave early, get there early, that didn't happen.

Had to get a UA and came back and had to. Call in antibiotics , but honestly this is her very first UTI and she's been in diapers. Are you serious? Almost nine years. So I really can't That's pretty good complain. But it was but it did a number on act Crazy though. Yeah. I did a number on her.

She just was not, we ended up going, 'cause we got her antibiotics and. But the whole weekend, she was not herself and so she didn't really get to enjoy , for baby the fourth and all the festivities we'd hoped, but yeah, she was on the mend. But it's those hurts. It was [00:27:00] just, yeah, they hurt really bad and I felt so bad for her because I'm like, how long, has she been hurting? Had it been feeling like that? Yeah. Yeah. It's just one of those things where you feel guilt because. It's not like she knew what was going on. And 

Deonna: it's those moments where you wish they could say yeah, I am hurting. Yeah. Here, please fix this. That's such a hard thing about having a non-verbal kid. 

Rhandyl: Yeah. And that's what we're working on. Actually, that's one of our, her speech goals is we are learning , the goal is for her to be able to name body parts in her device and be able to say our hurt or, yeah. And so that's one of our goals because I. That's one of our biggest struggles is when she's upset or mm-hmm. not feeling well. If she could, what the issue is, be able to tell us on her device. 'Cause she has the capacity to do that. It's just the motor planning, figuring out where those buttons are. Mm-hmm. So yeah. I'm hope, I'm hopeful. But yeah, so Buffalo. [00:28:00] Buffalo, yeah. 

Deonna: I know. I love that word. It's so funny. Yeah, Allie's Buffalo or our buffalo. Is, we dyed Allie's hair pink and her, so one of her nurses, Amber Lee, is cosmetologist, and does this on the side as well. Yeah, and I asked her if she would just dye the tips of her hair pink and everything. We really like when she was on shift, we were like, can you just dye her hair or whatever? Yeah. And so she came, she. Was like, do you want to bleach her hair so it'll be more obvious? And I was like, yeah, and so she bleached out. We actually went up quite a bit higher 'cause I was like, if we're gonna do this, we may as well do it.

Yeah. And, have fun with it. So she went up about half the head. It was basically like a bailage or whatever. Yeah. That right word is. But yeah, , she bleached it out and then dyed it pink. It was hot pink originally. Now it's like cotton candy pink. But it's so cute. She [00:29:00] loves it like it is. And it's funny 'cause we were like, we did it and then I thought, I don't even know if this is dress code, , when school starts. 'cause we really went way up into her hair, yeah. So we're like she might have pink care when school starts, but. Oh everybody loves it and it's so cute, fun and everything.

Oh my gosh. Yeah, that's our random thing. I never thought I would dye my child's hair. I. Any color, especially like a wild color. But you know when your kid gets in a wheelchair and has all this stuff happen, anything you can do to just make them have fun is exactly worth it. So yeah, that's our buffalo. What is y'all's 

Rhandyl: well. Something new Remi's been doing. She's been vocalizing a lot more. Yeah, and , she says, or repeats a new word a lot, but right now she's consistently and she gets so excited when she does it, we'll say. Ready, set. And she says, go. And she says it like really loud and Oh my gosh. Yeah. She's consistently saying it and it's the cutest thing ever. [00:30:00] So she's probably getting super annoyed. 'cause I feel like we're not even going anywhere doing anything. But we're like, Remi, ready, set. And she'll say, go 

Deonna: she's get one new word and then they bug you about it forever.

Rhandyl: I know. But she's saying that's cute though. She used to say mama for me. And so, mm-hmm. now she's calls me Mom, me, which is cute. Aw, I love that. That's new. And yeah, just her vocalizing has been really fun to. Something that she's been doing the last month that's exciting. But the ready, set go is, our, and that's something Buffalo 

Deonna: she can tell Barrett to do, go and they can interact with that. So that's cool. Oh yeah. I love that. 

Rhandyl: Oh, he's asking her all the time. Sissy. Ready set. So yeah, it's cute. 

Deonna: Aw, I love that. That's so exciting. Anytime she learns a new word, I'm like, yes.

But yeah, so we, we hope you guys have fun with this. It's just a way to know what's going on in our life because we always are talking to other people and stuff like that, but this is just our way that we're going to share our life from now on. [00:31:00] And so hopefully you guys love this and we will see you guys next time.

High Low Buffalo. 

**Disclaimer

Before we go, I wanna remind our listeners that this podcast is for the purpose of education and entertainment only, and is not a replacement for seeing a doctor. We suggest you seek out the help of a trained professional for help with your child's specific situation.

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